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I wondered why somebody didn't do something. 

This cryptic message was found in the papers of Willy Burgdorfer, namesake of Borrelia burgdorferi (the causative agent of Lyme disease), after his death. At TRUTHCURES® we wonder the same thing. We figure the one thing to do is to strike at the root of the Lyme "controversy" by proving the diagnostics and case definition were manipulated to exclude the sickest patients.

 

Our mission is to enable Lyme disease victims to obtain diagnosis and care by restoring an accurate case definition and valid diagnostics.  We will do this through legal action, engagement with federal and state agencies, public education, activism and media outreach. When the truth is acknowledged, a cure will follow.​

What does TruthCures do?

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TRUTHCURES is an all-volunteer organization, and until we obtained 501(c)3 status in July 2019 all efforts were self-funded or made possible through generous contributions by friends and other victims.

  • In 2021 we made huge strides. Executive Director Laura Hovind traveled to New Hampshire in August to speak at a meeting of Governor Chris Sununu's Lyme Disease Study Commission. In October, she and associate Lahra Tillman met with FDA officials to give a presentation about how the diagnostic method was manipulated to exclude the sickest patients. The presentation was very well received.  

 

  • We have made multiple trips to Washington, D.C. to educate legislators on the fraud that stands in the way of accurate Lyme disease diagnostics.

 

  • We were advised by one U.S. senator's legal staff that we should pursue a hearing of the Senate Committee on the Judiciary to expose the fraud.

  • In 2017 we met with 75% of the Senate Judiciary members or their staff, in addition to numerous House members to request a bicameral, bipartisan hearing.

  • We have discussed legal recourse with various law enforcement agencies at the highest levels.

  • We are seeking legal representation to take action against individuals and organizations who perpetuate this inhumane situation.

  • We maintain a social media presence to educate the public.

  • We conduct regular outreach to journalists and social justice organizations.

  • Tax-deductible donations are used to maintain our Web presence; subscribe to software and services that help us organize our enormous library of data that will be used for our legal case; build a legal fund; travel to important meetings and events; produce educational materials, videos and reports; and run our organization according to the highest ethical standards.